PATIENT AND PUBLIC INVOLVEMENT (PPI)
In the Cancer Prevention Trials Unit CPTU, we put patients and members of the public at the heart of everything we do. Since the trials are typically population-based, patient and public involvement (PPI) plays a crucial role to ensure our participants are diverse and represent of a range of backgrounds, experiences and views. Furthermore, the results of our cancer screening and prevention studies must be applicable and meaningful to the eligible populations. Active and sustained engagement with members of the public and community groups is key to not only ensuring dissemination but also wide uptake of study findings among those who may benefit from screening.
We are committed to patient-centred research, involving patients and the public at every level—from project design to results dissemination. We the support of a PPI Coordinator to ensure this involvement is meaningful and sustainable.
Active PPI Across Projects:
For each project, we actively involve patients and members of the public throughout the research lifecycle from grant writing and research design to the results dissemination phase. We also partner with community organisations, particularly those supporting under-served groups, to ensure we can learn from their experiences and perspectives and share study findings directly with relevant participant groups.
Impactful PPI Contributions:
YORKSURe trial: The PPI contributors played a key role in shaping the reciprocal design and carefully wording explanatory materials to convey the complex information to potential participants.
In the NHS-Galleri trial: PPI work focused on, the data use and sharing arrangements. were a focus of the PPI work. Understanding patient and public concerns around use of centralised personal healthcare data and international transfer of anonymised personal data helped us design participant information materials that were commended by the ethics committee and Sponsor.
For YouScreen: Collaborating, with Live Through This (LGBTIQ+ cancer group) we revised trail materials to be more inclusive for transmen. Additionally, the YouScreen website featured speak aloud translations (130 languages) and provided fully translated participant information sheets (PIS) in the top five languages for each London borough.
Get Involved: Shaping Our Research Through PPI
We have established two key patient and public involvement (PPI) initiatives to guide our research and activities:
- Standing Panel: Our standing panel of patient and public contributors plays a vital role in shaping our unit’s activities and research priorities. Panel members are actively involved in key decision-making, and are also part of the Strategic Advisory Board, and Scientific Committees.
- PPI Contributor Pool: Within our centre we have built a pool of over 150 contributors to support ad-hoc PPI activities. This pool helps us bring in diverse perspectives and quickly engage people for new projects.
Want to Get Involved?
Find out more about joining our PPI network by clicking
here.
Group level PPI
We now have a standing panel of PPI contributors, who meet regularly and help shape the Group’s activities and research priorities. Members of the PPI Panel will also be involved in key decision-making committees, such as the Strategic Advisory Board.
If you are interested in getting involved as a patient or public contributor, you can find out more by navigating to our
website.
