PATIENT AND PUBLIC INVOLVEMENT (PPI)
Putting Patients and the Public at the Heart of Our Research
In the Cancer Prevention Trials Unit CPTU, we put patients and members of the public at the heart of everything we do. We are committeed to patient-centred research, involving patients and the publi at ever level - from project design to results dissemination. We have the support of a PPI Coordinator to ensure this involvement is meaningful and sustainable.
Since our trials are typically population-based, patient and public involvement (PPI) plays a crucial role to ensure our participants are diverse and represent of a range of backgrounds, experiences and views. PPI also helps us to ensure that the results of our cancer screening and prevention studies are applicable and meaningful to the target populations. Active and sustained engagement with members of the public and community groups is key to not only ensuring dissemination but also wide uptake of study findings among those who may benefit from screening.
CPTU Patient and Public Involvement Panel:
Our standing panel of patient and public contributors plays a vital role in shaping our unit's activties and research priorities. Panel members are actively involved in key decision-making, and are also part of the Strategic Advistory Board, and Scientific Committees, as well as discrete projects.
Our Patient and Public Involvement pool:
Within our centre we have built a pool of 200 contributors to support ad-hoc PPI activities. This pool helps us bring in diverse perspectives and quickly engage people for new projects and activities.
Want to Get Involved?
Find our more about joining our PPI pool by clicking here.
If you are interested in getting involved as a patient or public contributor, you can join our Patient and Public Involvement Pool by signing up here.
Active PPI Across Projects:
For each project, we actively involve patients and members of the public throughout the research lifecycle from grant writing and research design to the results dissemination phase. We also partner with community organisations, particularly those supporting under-served groups, to ensure we can learn from their experiences and perspectives and share study findings directly with relevant participant groups.
Impactful PPI Contributions:
YORKSURe: The PPI contributors played a key role in shaping the reciprocal design and carefully wording explanatory materials to convey the complex information to potential participants.
NHS-Galleri: PPI work focused on, the data use and sharing arrangements. Understanding patient and public concerns around use of centralised personal healthcare data and international transfer of anonymised personal data helped us design participant information materials that were commended by the ethics committee and Sponsor.
YouScreen: Collaborating with Live Through This (LGBTIQ+ cancer group) we revised trail materials to be more inclusive for transmen. Additionally, the YouScreen website featured speak aloud translations (130 languages) and provided fully translated participant information sheets (PIS) in the top five languages for each London borough.
